FDNY Members to Participate in Rett Syndrome Awareness Event

On Oct. 12, members of FDNY will help out with a Rett Syndrome event at the Tweed Courthouse in New York City.

The gathering is called The Blue Sky Girl Event. Rett Syndrome is a unique developmental disorder considering the most physically disabling of the autism spectrum disorders.

It strikes randomly in early childhood, almost exclusively affecting little girls, although it extremely rarely can afflict young boys.

The awareness event is one of many they will be held throughout the country and around the world, according to the organizers. The New York City event will begin at 11 a.m.

FDNY Firefighter Kenny Lynch, a member of Haz-Mat Unit 1, is a co-chairman of the NYC event. FDNY members have helped out with the event for the past two years and are looking forward to helping to bring awareness to the devastating disorder that affects girls as they first learn to woak and talk.

Firefighters help the children afflicted with the syndrome symbolically climb stairs at the courthouse moving up and forward with each step.

Information on FDNY’s participation in the Blue Sky Event can be found on by clicking on this Facebook page link established to publicize the gathering.

Additional information about the disease and past events can be found by clicking this link to the Albert Einstein College of Medicine page dedicated to the Blue Sky Girls Event.